Cara Conquest writes about learning that her son was autistic and navigating years of paperwork and advocacy before her son finally got a space at an SEN school, where she is now a parent governor.
Beautiful writing. My son was diagnosed a year ago and I feel knee-deep in the “navigating.” Reading stories like these are welcome reminders that I’m not alone in this!
Thank you for writing this so beautifully, and sharing. We’re further down the line age wise and later in diagnosis - new normal building at secondary stage has been almost impossible at times. But there’s so much I recognise and can take comfort from here ❤️ I’ve held this idea of radial softness with it because so much of the world seems hard for him, using them as navigator rang so true. And jeez the paperwork! The appointments! The logistics! Medals all round.
Thank you for sharing your story. Our 11 year old daughter is still awaiting diagnosis, one of the many waiting lists she currently occupies, but the assessment is only a formality, we already know what it will say.
The waiting is awful. I'm no good at it and it probably the one lesson I find hardest to sit in. Can't fix everything on my timeline. And sometime solutions come out of left field!
Thank you for sharing your journey and am so glad you found a school where your child is thriving it’s all consuming the fighting, the paperwork I need to keep taking breaks between each step and find the energy to go again. X
Beautiful writing. My son was diagnosed a year ago and I feel knee-deep in the “navigating.” Reading stories like these are welcome reminders that I’m not alone in this!
Community is a lifeline, and you are not alone, sending love x
Thank you for writing this so beautifully, and sharing. We’re further down the line age wise and later in diagnosis - new normal building at secondary stage has been almost impossible at times. But there’s so much I recognise and can take comfort from here ❤️ I’ve held this idea of radial softness with it because so much of the world seems hard for him, using them as navigator rang so true. And jeez the paperwork! The appointments! The logistics! Medals all round.
Radical softness! Love this idea, would love to hear how you're navigating secondary, seems like the next Big Thing, among smaller Big Things.
Thank you for sharing your story. Our 11 year old daughter is still awaiting diagnosis, one of the many waiting lists she currently occupies, but the assessment is only a formality, we already know what it will say.
The waiting is awful. I'm no good at it and it probably the one lesson I find hardest to sit in. Can't fix everything on my timeline. And sometime solutions come out of left field!
Yeah it’s hard, especially not having any time frame as to when she could be called, could be months or years!
Thank you for sharing your journey and am so glad you found a school where your child is thriving it’s all consuming the fighting, the paperwork I need to keep taking breaks between each step and find the energy to go again. X
The paperwork is unbelievable. And never ending. Taking breaks the only way, sending love and luck with the red tape wrangling - solidarity!